New to Food Allergies - what do I do now?
These are some of the steps you will likely go through following a food-allergy diagnosis. Our support group can help you work through these.
Finding a supportive Allergist
Find a supportive allergist, make sure he/she is up-to-date with current recommended food-allergy management practices and protocols. You will probably have a list of questions when you visit your allergist (if your allergist does not welcome this, you may need to find an allergist you are more comfortable with).
Emergency Meds
If your Allergist has diagnosed you (or your child) as having a true food allergy (rather than an intolerance), be sure to ask for emergency medication, which will usually includes two (or more) doses of Epinephrine. Carry this medication with you always! Also note Epinephrine is temperature sensitive and can't be left in hot cars, snow etc. Ask your allergist when to use this, and write it down in a Food Allergy Action Plan document.
Food Allergy Action Plan (FAAP)
Food Allergy Action Plans (FAAP) are vital to understanding how to treat yourself or your child in the case of allergic reactions. They explain how your doctor thinks different allergic symptoms should be treated in your specific situation. Here is a sample form. There are many different possible symptoms of anaphylaxis. Ask your allergist to fill in the form, and to go over this form and the symptoms with you, and be prepared to ask lots of questions!
You can use a FAAP to explain to others how to care for the allergic person (including babysitters, family etc). Any schools, daycare etc should also ask you for a copy of this form, along with emergency medications prescribed by your doctor.
Understand Allergen Labeling
You will need to learn how to read Food Labels for Allergens; this includes what food labels do, and do not include, and understanding the other places that allergens can also appear (such as cosmetics, medicines, craft supplies).
Build a network of supportive people
Unfortunately some people (sometimes even close family), do not understand the seriousness of food allergies and think you are being overprotective or unreasonable. It is important to find people who are supportive of you, and who are supportive of the decisions you must make to keep yourself (or your child) safe. On the flip side, you will also find support and understanding coming from unexpected people!
Self-advocate
This is a skill many of us need to further develop: how to communicate with others in a firm, friendly and non-emotional manner! This can be difficult, especially when you are new to food allergy.
